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I was diagnosed with Fanconi Anaemia (FA) when I was five years old and received a bone marrow transplant at age ten. I got graft-versus-host-disease (GVHD) the same week of my transplant and it was a tough three years of recovery.

Fast forward to 12 hours later, the same little girl lying hooked up to machines, blood and platelet transfusions and a bone marrow biopsy booked for first thing Saturday morning. This is our story in Hayleigh’s journey with Fanconi Anaemia.

I was diagnosed with Fanconi Anaemia (FA) when I was five years old and received a bone marrow transplant at age ten. I got graft-versus-host-disease (GVHD) the same week of my transplant and it was a tough three years of recovery.