01 — THE WHY
Mapping FA helps FANCSA listen, connect and respond. It brings together families, medical professionals and advocates so that support can reach people wherever they are on their journey.
02 — STORIES ACROSS SOUTH AFRICA
Awareness begins with a conversation.
From talks to family gatherings, shared knowledge helps people recognise FA, ask questions and know they are not alone.
Families carry vital knowledge.
Each family’s experience helps FANCSA better understand the practical realities of living with FA and the support that makes a difference.
03 — STAY CONNECTED
Whether you are a person living with FA, a family member, clinician or community supporter, contact FANCSA to share your perspective and find the support you need.
Families
Clinicians
Supporters