Jolandie

+27 83 264 0439

Robin

+27 83 414 1191

Email

jolandie@fancsa.org.za

Together We Fight Pack

A Fanconi Anaemia diagnosis can feel overwhelming but you are not alone. Our Together We Fight Pack is a special care package designed to support newly diagnosed FA patients and their families with essential information, comfort items, and tools to help navigate the road ahead.

WHAT’S INSIDE

What does the pack include?

Practical care essentials, trusted resources, and a few thoughtful touches for everyday life.

A South African child portrait
A South African child in warm light
Two people holding hands
Hands forming a heart around sunlight
A smiling young child playing outdoors
A smiling young black girl looking toward the camera
A South African child portrait
A South African child in warm light
Two people holding hands
Hands forming a heart around sunlight
A smiling young child playing outdoors
A smiling young black girl looking toward the camera

Welcome essentials

A branded backpack with a personalised welcome letter

A branded backpack with a personalised welcome letter

A branded backpack with a personalised welcome letter

Five educational infographics in your preferred language

Five educational infographics in your preferred language

Five educational infographics in your preferred language

Two practical lifestyle guides focused on healthy, preventative habits and why they matter

Two practical lifestyle guides focused on healthy, preventative habits and why they matter

Two practical lifestyle guides focused on healthy, preventative habits and why they matter

Daily care & protection

A branded sun hat, SPF 50 sunscreen, and CANSA approved SPF lip balm

A branded sun hat, SPF 50 sunscreen, and CANSA approved SPF lip balm

A branded sun hat, SPF 50 sunscreen, and CANSA approved SPF lip balm

Alcohol-free mouthwash, with an easy guide on the importance of oral care in FA

Alcohol-free mouthwash, with an easy guide on the importance of oral care in FA

Alcohol-free mouthwash, with an easy guide on the importance of oral care in FA

FAexam App overview, setup instructions and QR code download

FAexam App overview, setup instructions and QR code download

FAexam App overview, setup instructions and QR code download

Resources & access

A mobile data coupon (where needed)

A mobile data coupon (where needed)

A mobile data coupon (where needed)

FCF Clinical Care Guideline download QR code

FCF Clinical Care Guideline download QR code

FCF Clinical Care Guideline download QR code

A health check-up list with annual screening recommendations

A health check-up list with annual screening recommendations

A health check-up list with annual screening recommendations

Community connection

A child-friendly guide to Fanconi Anaemia through the eyes of Benji the Honey Badger, FANCSA's Official Mascot

A child-friendly guide to Fanconi Anaemia through the eyes of Benji the Honey Badger, FANCSA's Official Mascot

A child-friendly guide to Fanconi Anaemia through the eyes of Benji the Honey Badger, FANCSA's Official Mascot

A FANCSA branded diary, pen and water bottle

A FANCSA branded diary, pen and water bottle

A FANCSA branded diary, pen and water bottle

We are currently piloting the program with 18 active patients in our support group and aim to expand this offering through future fundraising and sponsorship.


If you or your loved one has been newly diagnosed with Fanconi Anaemia and would like to receive a care package, please reach out to us via our Support Request Form or email us directly at jolandie@fancsa.org.za.